Any of you ever visited North West Trek?
We did and I recommend it!
Even though when we went a vet was there to examine a mountain goat and the only way to do that was to shoot it with a tranquilizer gun. So if your children are extra sensitive, beware. Though if you have boys they'll think it's cool!
Thursday, April 9, 2009
Wednesday, April 8, 2009
Therapy
Naomi loves her therapy, loves her therapist. When her occupational therapist comes to get her from the physical therapist in the gym she runs up to her for a hug. When she sees her speech therapist she gets so excited and points like "I know you!". So today I called the state program that pays for our therapy. I have to reapply for the program every year and I sent all my paper work in back in November. Her coverage ran out January 31 and it was March 23 before we got our approval letter. One problem.... they didn't add therapy on to the approval letter. My husbands insurance through work pays for 52 therapy sessions a year. Since Naomi gets 6 therapy sessions a week that goes quickly then we're thankful for BCMH to pick up the slack and continue her therapy.
On March 23 after receiving the approval letter minus the therapy I went to our pediatricians office so they could fax what I needed sent in to BCMH. They actually had to first send it to our neurologist office. Long story short everything was faxed to BCMH on March 30. It was put on the nurses desk for review April 2, I just got off the phone to BCMH and she told me that therapy is special and we have to actually ask for it every year, it's not just automatically added on! What crap! She said I've done everything right though.
As soon as I got off the phone with BCMH the therapy called. Naomi is out of visits. I told her to go ahead and cancel tomorrows appointment because let me tell you seeing 3 therapist is not cheap!!!! If we just continue as we have been and no one else will pay for it we would be in the poor house quick!
As much as I hate having to get up early and get her going out the door to therapy by 8 on Tuesdays and Thursdays I'm sitting here crying over it because she's my baby and she needs help and what if everything doesn't come through and we can't afford to give her the help!
She does get additional therapy for free through the local special needs school, they're on spring break this week.
It's all so stressful. Like having a kid with developmental delays isn't enough you have to go to war with the system to get them the help they need!
And why is it all so expensive!!! Over $2200/ month for therapy!
On March 23 after receiving the approval letter minus the therapy I went to our pediatricians office so they could fax what I needed sent in to BCMH. They actually had to first send it to our neurologist office. Long story short everything was faxed to BCMH on March 30. It was put on the nurses desk for review April 2, I just got off the phone to BCMH and she told me that therapy is special and we have to actually ask for it every year, it's not just automatically added on! What crap! She said I've done everything right though.
As soon as I got off the phone with BCMH the therapy called. Naomi is out of visits. I told her to go ahead and cancel tomorrows appointment because let me tell you seeing 3 therapist is not cheap!!!! If we just continue as we have been and no one else will pay for it we would be in the poor house quick!
As much as I hate having to get up early and get her going out the door to therapy by 8 on Tuesdays and Thursdays I'm sitting here crying over it because she's my baby and she needs help and what if everything doesn't come through and we can't afford to give her the help!
She does get additional therapy for free through the local special needs school, they're on spring break this week.
It's all so stressful. Like having a kid with developmental delays isn't enough you have to go to war with the system to get them the help they need!
And why is it all so expensive!!! Over $2200/ month for therapy!
Tuesday, April 7, 2009
The 9 fingered Dentist
That's what the dentist may be able to rename his practice after an encounter tomorrow with my baby girl!
I called my neighbor last night ,who is a supervisor at the hospital very near the pediatric dentist Naomi will be visiting, and asked her to have a surgical team assembled to reattach the dentist's finger. She laughed and said she'd make sure the hand surgeons were well equipped and ready to operate.
Seriously my child has one heck of a bite on her! Her speech therapist gave her a Nuk massage brush to chew while she was there then put it in the dishwasher. She said when she pulled it out she saw it was shredded and she showed it to her supervisor and she was in awe. She'd never seen a child do that!!!!
Naomi is going to the dentist because her 2 year molars have not all came in. Only 1 of the four came in and it just popped up in December. Our dentist said the pediatric dentist could x-ray her and see if she even has the molars. If not, then she just doesn't have them. I'm kind of hoping that's the case! My husband says his wisdom teeth came in with no problem. So I don't doubt that it's possible there's some genetic predisposition to lack of teeth. His Grandpa is from Kentucky. His Grandma is from Alabama and they lived together in West Virginia. None of those states exactly known for their dental care.
So tomorrow 3 pm EST stop for a moment of silence for the poor dentist who may have lost a finger. Well the appointment is at 3 so it'll probably be more like 3:30 before we actually see the dentist!
DENTAL UPDATE:
We went to the dentist. Basically he counted teeth and looked at her teeth thoroughly. She screamed the whole time. The dentist and I sat knee to knee and He held her head in his lap and looked in her mouth from behind, while I held her bottom in my lap with her lengthy legs dangling and me holding on to her hands. Like I said she screamed, no tears just yelling. As soon as we let her up she was fine even giggled as we walked out to the toy chest. The dentist said lots of kids don't get their 2 year molars until after 3 maybe even 4. He thought since she doesn't eat much hard food on the Ketogenic Diet that she doesn't have that chewing to help them come in. He said he could feel the lower left, it's definitely there and if in 6 months they're not in to call and maybe do x-rays to look at the tops. He also said there will probably be a lot of crowding in her teeth so maybe at 9 or 10 start looking into braces.
Can we start making payments now? As much as they've gone up in the last 16 years since I had braces I can just imagine what they're be 7 years from now! UGH!!!
I called my neighbor last night ,who is a supervisor at the hospital very near the pediatric dentist Naomi will be visiting, and asked her to have a surgical team assembled to reattach the dentist's finger. She laughed and said she'd make sure the hand surgeons were well equipped and ready to operate.
Seriously my child has one heck of a bite on her! Her speech therapist gave her a Nuk massage brush to chew while she was there then put it in the dishwasher. She said when she pulled it out she saw it was shredded and she showed it to her supervisor and she was in awe. She'd never seen a child do that!!!!
Naomi is going to the dentist because her 2 year molars have not all came in. Only 1 of the four came in and it just popped up in December. Our dentist said the pediatric dentist could x-ray her and see if she even has the molars. If not, then she just doesn't have them. I'm kind of hoping that's the case! My husband says his wisdom teeth came in with no problem. So I don't doubt that it's possible there's some genetic predisposition to lack of teeth. His Grandpa is from Kentucky. His Grandma is from Alabama and they lived together in West Virginia. None of those states exactly known for their dental care.
So tomorrow 3 pm EST stop for a moment of silence for the poor dentist who may have lost a finger. Well the appointment is at 3 so it'll probably be more like 3:30 before we actually see the dentist!
DENTAL UPDATE:
We went to the dentist. Basically he counted teeth and looked at her teeth thoroughly. She screamed the whole time. The dentist and I sat knee to knee and He held her head in his lap and looked in her mouth from behind, while I held her bottom in my lap with her lengthy legs dangling and me holding on to her hands. Like I said she screamed, no tears just yelling. As soon as we let her up she was fine even giggled as we walked out to the toy chest. The dentist said lots of kids don't get their 2 year molars until after 3 maybe even 4. He thought since she doesn't eat much hard food on the Ketogenic Diet that she doesn't have that chewing to help them come in. He said he could feel the lower left, it's definitely there and if in 6 months they're not in to call and maybe do x-rays to look at the tops. He also said there will probably be a lot of crowding in her teeth so maybe at 9 or 10 start looking into braces.
Can we start making payments now? As much as they've gone up in the last 16 years since I had braces I can just imagine what they're be 7 years from now! UGH!!!
Sunday, April 5, 2009
No Bunny for Easter
Fawn is looking for Easter treat ideas for a kid on the Ketogenic Diet. That made me think of Resurrection Cookies. For some reason I was thinking that the cookies disappeared over night but no, they're just hollow. So that's out! What kind of mother would take a child through making cookies only to say "sorry, you can't have one!". That's the predicament us Keto-moms are in. Trying to find non-food treats for food centered holidays. But, if it helps our kids we find a way and remember it's only 2 or 3 Easter's we have to get through.
So if anyone has any ideas send them over to Fawn.
I thought I'd post a link to a Resurrection Cookie recipe I found on the Internet that illustrates it much better than I could!
Now here's what we're going through this Easter. Naomi is clueless so she could care less. There will be no Easter egg hunt for her. She doesn't do "in" she only does "take out and throw".
Isaiah wants a chocolate bunny. He told his Dad the Easter bunny will bring it and Bill said "son, do you really think there's a giant bunny my size going door to door?" Isaiah said "no that's not believable but maybe a little one."
Back when he asked me about Santa and I told him that yes his friend was right, I put the presents under the tree. The next question was "what about the Easter bunny?" and I told him Yep, that's me too. So we thought he understood. I think he does know he's just having trouble letting go! I've even been asking him to help pick stuff out for Naomi's basket thinking then he'd be on the giving side of it. I guess he's just at that age. In between knowing it's all not real and accepting it's all not real.
So if anyone has any ideas send them over to Fawn.
I thought I'd post a link to a Resurrection Cookie recipe I found on the Internet that illustrates it much better than I could!
Now here's what we're going through this Easter. Naomi is clueless so she could care less. There will be no Easter egg hunt for her. She doesn't do "in" she only does "take out and throw".
Isaiah wants a chocolate bunny. He told his Dad the Easter bunny will bring it and Bill said "son, do you really think there's a giant bunny my size going door to door?" Isaiah said "no that's not believable but maybe a little one."
Back when he asked me about Santa and I told him that yes his friend was right, I put the presents under the tree. The next question was "what about the Easter bunny?" and I told him Yep, that's me too. So we thought he understood. I think he does know he's just having trouble letting go! I've even been asking him to help pick stuff out for Naomi's basket thinking then he'd be on the giving side of it. I guess he's just at that age. In between knowing it's all not real and accepting it's all not real.
The Next Generation
When did I slip into the hole left by my parents "baby boomer" generation?
I was once one of those girls with a boyfriend with way too much money invested in a car stereo system. I married him! Bill's stereo was so loud in his truck that the rear view mirror was a safety hazard. The bass would vibrate it until it only reflected the seat bottoms.
Today Naomi was napping and our neighbor girls boyfriend was revving the engine of his car. He's put one of those tail pipes on it that makes it sound like a race car, even though it's a Chevy Cobalt. I hope he can laugh at the money he spent on that some day, and how ridiculous it is to put pipes like that on THAT car. A bit like putting racing stripes on an AMC Pinto.
I was just laying there wishing she'd wake up so I'd have a reason to go out there and shove that muffler, I mean reasonably discuss how rude it is to make so much noise. It's not just normal coming and going he means to rev it again and again and again and he's sitting right under the bedroom window doing it.
At least I don't have to hear it late at night. He spends most weekends over there all night. Being that their 16 yr old kids they don't get up and leave at the crack of dawn either. So by the time they do leave I've been up for hours. (Sorry I'm trying really hard not to judge their parents for this but I'm having a hard time!)
Maybe some morning at 6 I should go under their bedroom window with a CD player and blast them with Thomas' Trackside Tunes or the Veggietales Jonah soundtrack! Some ,We Are the Pirates Who Don't Do Anything at 6 a.m. may just make them conscious of my plight!
I was once one of those girls with a boyfriend with way too much money invested in a car stereo system. I married him! Bill's stereo was so loud in his truck that the rear view mirror was a safety hazard. The bass would vibrate it until it only reflected the seat bottoms.
Today Naomi was napping and our neighbor girls boyfriend was revving the engine of his car. He's put one of those tail pipes on it that makes it sound like a race car, even though it's a Chevy Cobalt. I hope he can laugh at the money he spent on that some day, and how ridiculous it is to put pipes like that on THAT car. A bit like putting racing stripes on an AMC Pinto.
I was just laying there wishing she'd wake up so I'd have a reason to go out there and shove that muffler, I mean reasonably discuss how rude it is to make so much noise. It's not just normal coming and going he means to rev it again and again and again and he's sitting right under the bedroom window doing it.
At least I don't have to hear it late at night. He spends most weekends over there all night. Being that their 16 yr old kids they don't get up and leave at the crack of dawn either. So by the time they do leave I've been up for hours. (Sorry I'm trying really hard not to judge their parents for this but I'm having a hard time!)
Maybe some morning at 6 I should go under their bedroom window with a CD player and blast them with Thomas' Trackside Tunes or the Veggietales Jonah soundtrack! Some ,We Are the Pirates Who Don't Do Anything at 6 a.m. may just make them conscious of my plight!
Saturday, April 4, 2009
My Latest Book
Ok, FINALLY I got to the library to get a book! I started reading it today it's titled "I Was A Really Good Mom Before I Had Kids".
I saw the women who wrote the book on the Today Show promoting their latest book "I'd Trade My Husband for a Housekeeper".
I just started the book today but already I feel really good about reading it. It's a reality check in some ways. About the pressures we moms put on ourselves and some of the unrealistic expectations. One thing I read that I totally relate to is this...Part of my stress is decision making. I mean I'm totally responsible for everything related to my kids. Since I make all the decisions I am responsible if it doesn't work out.
Bill is really good about helping with meals, laundry, cleaning and all that. But sometimes the biggest thing that would help me is if he would make a decision. He won't even decide what restaurant we'll go out to. Most of that is mostly he doesn't want to make the wrong decision.
The book says as mom's we're chauffeurs, accountants, interior designers, etc. and what cracked me up is it says we get frequent daily job "reviews" from angry little bosses.
I do feel burnt out sometimes. I feel like if I were to go back to work I'd feel extreme guilt and if I continue to stay home the days just all run together. I can't even imagine leaving Naomi with a baby sitter. I can't even leave her very often with her Dad. I just feel like the one time I'm not with her something bad will happen. Especially since once I had an appt. with the SS office and Bill called me on my way home and she was having a really bad cluster.
It feels selfish to say but I miss getting up when I wanted, going to bed when I wanted. Just being able to be where Naomi is out of my eye sight without worrying she's climbing something, tearing up something or anything like that.
There's no taking her outside to watch her play in the yard. Or play with her. Our yard is not fenced and going out is super stressful. I'm just constantly chasing her all over the place trying to keep her from running all over the place. Trying to keep her from eating dirt and grass. She mostly swings. At least then she's contained.
She's so funny and so much fun so much of the time. But still how would you like to be at work 24/7? That's what it feels like too often. It's a catch 22 though. If I go away for a break I am so anxious wondering what is going on with her.
Bill did make a gate for the deck so this year hopefully we'll at least get out on the deck and I won't have to worry about her falling down the steps onto concrete. Last summer was shot because of Topamax and it's nasty side effects.
I know one day Isaiah will be grown. Heck, he seems mostly grown now, he can pretty much take care of himself! I know one day I'll forget how this all feels some days and wish they were little again. I know I should just enjoy one day at a time. But some days are harder than others.
Oh well, I think I need a nap!
I saw the women who wrote the book on the Today Show promoting their latest book "I'd Trade My Husband for a Housekeeper".
I just started the book today but already I feel really good about reading it. It's a reality check in some ways. About the pressures we moms put on ourselves and some of the unrealistic expectations. One thing I read that I totally relate to is this...Part of my stress is decision making. I mean I'm totally responsible for everything related to my kids. Since I make all the decisions I am responsible if it doesn't work out.
Bill is really good about helping with meals, laundry, cleaning and all that. But sometimes the biggest thing that would help me is if he would make a decision. He won't even decide what restaurant we'll go out to. Most of that is mostly he doesn't want to make the wrong decision.
The book says as mom's we're chauffeurs, accountants, interior designers, etc. and what cracked me up is it says we get frequent daily job "reviews" from angry little bosses.
I do feel burnt out sometimes. I feel like if I were to go back to work I'd feel extreme guilt and if I continue to stay home the days just all run together. I can't even imagine leaving Naomi with a baby sitter. I can't even leave her very often with her Dad. I just feel like the one time I'm not with her something bad will happen. Especially since once I had an appt. with the SS office and Bill called me on my way home and she was having a really bad cluster.
It feels selfish to say but I miss getting up when I wanted, going to bed when I wanted. Just being able to be where Naomi is out of my eye sight without worrying she's climbing something, tearing up something or anything like that.
There's no taking her outside to watch her play in the yard. Or play with her. Our yard is not fenced and going out is super stressful. I'm just constantly chasing her all over the place trying to keep her from running all over the place. Trying to keep her from eating dirt and grass. She mostly swings. At least then she's contained.
She's so funny and so much fun so much of the time. But still how would you like to be at work 24/7? That's what it feels like too often. It's a catch 22 though. If I go away for a break I am so anxious wondering what is going on with her.
Bill did make a gate for the deck so this year hopefully we'll at least get out on the deck and I won't have to worry about her falling down the steps onto concrete. Last summer was shot because of Topamax and it's nasty side effects.
I know one day Isaiah will be grown. Heck, he seems mostly grown now, he can pretty much take care of himself! I know one day I'll forget how this all feels some days and wish they were little again. I know I should just enjoy one day at a time. But some days are harder than others.
Oh well, I think I need a nap!
Thursday, April 2, 2009
Another reason to hate sports
Have you seen the uniforms that high school girls wear for volleyball now a days?
God I sound old! But really!
Skin tight shirts, knee socks and shorts so short and so tight they must be made of stretchy material! But they barely cover their tushys!
Sadly at this age, I'm pretty sure I have panties bigger than those girls "shorts"!
Is the word inappropriate still in the dictionary? There's so many things that are not appropriate going on I just can't believe it still is.
Maybe it's that no one uses a dictionary anymore! Maybe I should "Google" the word!
Maybe I'm just old, but it seems like the more time passes the higher hem lines go up.
My Aunt is almost 70 and still has her HS cheerleading skirt. Think poodle skirt, that's how long it is.
I graduated in 1992 and the cheerleaders had skirts that came just above the knees. At this rate by the time Naomi graduates the girls will be out there in nothing but a thong!
God I sound old! But really!
Skin tight shirts, knee socks and shorts so short and so tight they must be made of stretchy material! But they barely cover their tushys!
Sadly at this age, I'm pretty sure I have panties bigger than those girls "shorts"!
Is the word inappropriate still in the dictionary? There's so many things that are not appropriate going on I just can't believe it still is.
Maybe it's that no one uses a dictionary anymore! Maybe I should "Google" the word!
Maybe I'm just old, but it seems like the more time passes the higher hem lines go up.
My Aunt is almost 70 and still has her HS cheerleading skirt. Think poodle skirt, that's how long it is.
I graduated in 1992 and the cheerleaders had skirts that came just above the knees. At this rate by the time Naomi graduates the girls will be out there in nothing but a thong!
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