My favorite flowering shrub? bush? what ever, is in bloom.
I'm no P. Allen Smith. I just like it.
Saturday, May 30, 2009
Weigela
My favorite flowering shrub? bush? what ever, is in bloom.
I'm no P. Allen Smith. I just like it.
New Name
I think when I started this blog and it asked for a title I was lost!
I wanted to start it then. So I gave it a lengthy name. Forever since I've wanted to change that name to something simpler. Today I did it.
I now christen thee...... Time Well Wasted.
God knows I've wasted a lot of time writing this and reading others. But it's completely worth it!
I've learned so much.
Been so inspired.
"Met" so many nice people online and been completely entertained by the brilliantly routine life of a house mother in WA.
I've seen more of the Yukon, than I otherwise would have.
Heard of old movies I didn't know existed.
Been linked to family member after family member .
Most amazingly of all I connected with someone else who's daughter had seizures. At the time I first found her blog we didn't know it ,but our girls were only born weeks apart andboth had the same seizure disorder. Then, most miraculously, both girls started the Ketogenic Diet on the exact same day! Them in Vancouver, BC. Us in Cleveland, OH.
Well I've wasted enough time on this! Got to go find a new blog to follow.
I wanted to start it then. So I gave it a lengthy name. Forever since I've wanted to change that name to something simpler. Today I did it.
I now christen thee...... Time Well Wasted.
God knows I've wasted a lot of time writing this and reading others. But it's completely worth it!
I've learned so much.
Been so inspired.
"Met" so many nice people online and been completely entertained by the brilliantly routine life of a house mother in WA.
I've seen more of the Yukon, than I otherwise would have.
Heard of old movies I didn't know existed.
Been linked to family member after family member .
Most amazingly of all I connected with someone else who's daughter had seizures. At the time I first found her blog we didn't know it ,but our girls were only born weeks apart andboth had the same seizure disorder. Then, most miraculously, both girls started the Ketogenic Diet on the exact same day! Them in Vancouver, BC. Us in Cleveland, OH.
Well I've wasted enough time on this! Got to go find a new blog to follow.
TrekEarth
I stumbled across the neatest website yesterday and had a hard time tearing myself away from it! www.trekearth.com. It says learning about the world through photography. You can choose a destination and then click through photo after photo! It is so neat.
Friday, May 29, 2009
Forgive me, I know not what I do!
Ohhhhh no. First off I am not someone who wants to be in any kind of spot light. I would rather hold the camera than be in front of the camera. But here's what I've set in motion...
I was watching the news a while ago and they asked if anyone had any ideas for a news show to email them. I had just that day talked to more than one person about Naomi's diet and of course no one knew anything about it or how it worked. So I emailed the news station and told them a little about the Ketogenic Diet.
The health anchor emailed me back and said she was very interested in doing a story about it. She would get in touch with the Clinic and see if they would like any publicity about their Ketogenic program.
A few weeks, maybe months have gone by. Then yesterday I got an email from the Clinic. The news station contacted the media relations department and they'd talked to our doctor and she's on board with doing a story about the diet and thinks Naomi would be a great story.
So I emailed them back saying that's fine just let me know what we need to do. Then I freaked, called a friend and my mom and said "how do I loose 50 pounds fast?".
If it wasn't for Naomi and the fact that the diet has helped her there is no way I'd get on TV with her! I'm fine with her being on TV. She's cute! But it is not exactly on my bucket list!
I was actually hoping they'd find someone who it had been miraculous for and interview them. Though the flip side to that is that this will show the diet can help but it's not always instant and it's not a guarantee cure.
I hope this helps someone. That maybe someone who has had their kid on multiple medications will see this and see it as another option. An option that at least will give them their child back.
We are still on 300 mg twice a day of Keppra. I think I'll wean her down to 200 mg in the morning. But today I heard her call the dog "bear" a word she used to say over and over. I also heard "ball". She sits and looks at us directly in the eyes and smiles this sweet little smile. She also is more aware of what she wants and is jiggling door knobs and getting mad about wanting something and she can't express what it is. Yesterday she had no cluster and only 10 seizures all day long. All but about 3 of those were when she was getting up or I picked her up and she just got this look on her face like she'd gotten dizzy. She started on higher calorie meals yesterday and this morning her urine ketones were only trace. I'm not sure if it's the higher calories or possible teething. I need more than a day to figure that out. If it is teeth. she's still having a pretty good time of it. There was a time when if her teeth were coming in she could have near 100 myoclonics in a day and maybe 80 of them would be in 1 cluster. Today she's had no cluster but is having a few more than she's had other days over the past week.
The clinical nurse called today and I asked him if I was going to see a problem with withdrawal would that have already happened? He said , absolutely. That made me feel much better going ahead and dropping a dose in 1 week as opposed to 2. We've seen nothing but improvement so why wait!
I was watching the news a while ago and they asked if anyone had any ideas for a news show to email them. I had just that day talked to more than one person about Naomi's diet and of course no one knew anything about it or how it worked. So I emailed the news station and told them a little about the Ketogenic Diet.
The health anchor emailed me back and said she was very interested in doing a story about it. She would get in touch with the Clinic and see if they would like any publicity about their Ketogenic program.
A few weeks, maybe months have gone by. Then yesterday I got an email from the Clinic. The news station contacted the media relations department and they'd talked to our doctor and she's on board with doing a story about the diet and thinks Naomi would be a great story.
So I emailed them back saying that's fine just let me know what we need to do. Then I freaked, called a friend and my mom and said "how do I loose 50 pounds fast?".
If it wasn't for Naomi and the fact that the diet has helped her there is no way I'd get on TV with her! I'm fine with her being on TV. She's cute! But it is not exactly on my bucket list!
I was actually hoping they'd find someone who it had been miraculous for and interview them. Though the flip side to that is that this will show the diet can help but it's not always instant and it's not a guarantee cure.
I hope this helps someone. That maybe someone who has had their kid on multiple medications will see this and see it as another option. An option that at least will give them their child back.
We are still on 300 mg twice a day of Keppra. I think I'll wean her down to 200 mg in the morning. But today I heard her call the dog "bear" a word she used to say over and over. I also heard "ball". She sits and looks at us directly in the eyes and smiles this sweet little smile. She also is more aware of what she wants and is jiggling door knobs and getting mad about wanting something and she can't express what it is. Yesterday she had no cluster and only 10 seizures all day long. All but about 3 of those were when she was getting up or I picked her up and she just got this look on her face like she'd gotten dizzy. She started on higher calorie meals yesterday and this morning her urine ketones were only trace. I'm not sure if it's the higher calories or possible teething. I need more than a day to figure that out. If it is teeth. she's still having a pretty good time of it. There was a time when if her teeth were coming in she could have near 100 myoclonics in a day and maybe 80 of them would be in 1 cluster. Today she's had no cluster but is having a few more than she's had other days over the past week.
The clinical nurse called today and I asked him if I was going to see a problem with withdrawal would that have already happened? He said , absolutely. That made me feel much better going ahead and dropping a dose in 1 week as opposed to 2. We've seen nothing but improvement so why wait!
Thursday, May 28, 2009
Change in Diet
Today Naomi got an increase in calories. She went from 1050 calories a day to 1150. That means each meal is 288 calories. The dietitian is willing to go to 1200 calories but I want to just adjust by 100 calories for now and I'll keep in mind that the other 50 is there if needed. She just feels so skinny! We're not used to that in our house. She's 37 1/2 inches and 32 pounds now.
Last Friday we started weaning her off Keppra. It's going good. We've seen absolutely no negative side effects from weaning her and it's been quite a few days now so I feel like if something big was going to happen it would have.
She was averaging 30 seizures a day and about once a week we'd see about 50. That was split between 2 clusters (after waking overnight and nap) and some random here and there seizures. A cluster would usually have about 15. Since dropping her to 300 mg. twice a day she's having about 15 all day. She has days where she doesn't have any cluster. The largest cluster I've seen all week is 5! Those are really light and you have to be holding her to know she's had most of the seizures. One morning the first 4 seizures I only felt because I had my hand under her bottom and could feel the muscles inside her thighs slightly tighten. There was no eye movement, no head drop just that little muscle tension, quick as a hiccup.
Today she's eating better after being sick for quite a while. Eating and drinking.
She had a stomach bug, thrush, green goop in one eye and to top it all of one of those darn 2 year molars is coming in too!!!! But the fact that she's teething and we've still seen no big cluster is awesome!
Here's my latest Keto-dreams! I dreamed Bill told me "she's eating good" and there she stood in a corner eating Reese's pieces. I yelled at him that she couldn't have that.
Then I dreamed I was feeding her birthday cake in the car while driving. When we got out of the car I looked at her and said "what's that red and blue all over your face? Oh SH*T it's frosting! I can't feed you that!!!!! "
I think I have some Anxiety issues!
Wednesday, May 27, 2009
Reality???
I must admit I am a little caught up in the John and Kate plus 8 drama.
I feel terrible for the kids. I would hate to be Kate! Not too many people have their husband possibly caught out with another woman and everyone understands why he would be out with someone else. Usually there's empathy for the wife. Not so much in her case.
The following is based on the shows I've watched and how they've been made to appear. I am not some nut who feels like I know these people! I mean I watch the show, I don't catch EVERY episode. I haven't bought their books. I don't read newspaper articles about them.
On the season premier Kate kept rolling her eyes and making a big deal out of how she was doing the birthday party all by herself. She said she usually plans them out for a year. So what is she complaining about? The work it takes to actually pull it all off? Other years when they've had the parties John was setting up, John was doing everything as she ordered. Even when she over flowed the washer. He had to drop everything and clean that up. Usually he was the one getting the kids in their party outfits. Then this year, she goes to the party to set up. She was wearing heels and a dress or skirt I believe and her friend Beth and her girl had on jeans and a t-shirt. Who do you think did all the work? Then there were 2 other men there to help and someone set up the bouncy things. When John got there she told him to go up and see what was holding everything up and he had to dry off 2 of the bouncy things. He had ran back to the house to pick up her phone (I think) and the cakes which she forgot. Now, if she was alone with those kids I can see how she'd be so busy. But when she was setting up SOMEBODY was home with them. The food had to have been catered. So besides stuffing the pinatas and making up goody bags and sending invitations, what did she do that was so unusually hard. Do you think if John was there to help that she'd have taken suggestions from him?
On the last episode from the previous season I told my husband that I thought they should have said from day 1. If one of us wants out, we quit. When John said he was having a hard time and wanted to stop that should have been it. I'm really wondering if he was really staying at his mom's because she broke her foot or if there was a problem then too.
I think it's stupid he was out with a 23 year old. Whether he's having an affair or Kate's having an affair, that's between them. What kind of people want to make a living making other people miserable. Paparazzi that's who.
Now for Kate's brother and sister in law speaking out. I really don't know what they think can be gained by what they're saying. Some things are fine. But others cross a line. If either John or Kate came to them and told them things in confidence they should keep that to themselves.
John and Kate were so Christian there for a while. I'm not questioning their relationship with God. I just think they exploited Christianity as much as they've exploited their family. They know church women are sitting there watching their family and those women will invite Kate to speak (for a fee) and buy the books and videos.
When Kate had those kids at the children's museum and running around in high heels I thought what a change! Where's the khakis and t-shirt wearing mom? How does a mom who has to get 8 kids ready, alone, find the time to get so dolled up? When the little girl freaked out because her sister splashed her I thought that spoke volumes. Maybe she was wore out, but I think she totally over reacted and a lot of that is Kate's OCD. She does seem to have lightened up on the kids some since she is so much more focused on herself.
I really hope they can work something out for the kids. I really do. But I also think people generally marry one person and divorce some one entirely different. They are so changed. John's burnt out I think, and I can't blame him. He's younger than I am! He had those kids a lot. Whether he had help or not he really had to put those kids and his wife before his own happiness. I know Kate says she's doing it all for the kids and maybe in her own mind she's twisted it that way. Isn't the best thing you can do for your kids is treat your spouse with love, respect, kindness and understanding.
Money doesn't buy happiness and a bigger house isn't going to hide the fact Daddy is gone.
I do think it's kind of funny she got stuck with the dogs! I wonder if she's still such a stickler that the poop gets picked up. Maybe she has people for that. I can't imagine her out in her heels, sun glasses on with a glove and a bag picking up after German Sheppards. Now there's an episode I'd watch!!
I feel terrible for the kids. I would hate to be Kate! Not too many people have their husband possibly caught out with another woman and everyone understands why he would be out with someone else. Usually there's empathy for the wife. Not so much in her case.
The following is based on the shows I've watched and how they've been made to appear. I am not some nut who feels like I know these people! I mean I watch the show, I don't catch EVERY episode. I haven't bought their books. I don't read newspaper articles about them.
On the season premier Kate kept rolling her eyes and making a big deal out of how she was doing the birthday party all by herself. She said she usually plans them out for a year. So what is she complaining about? The work it takes to actually pull it all off? Other years when they've had the parties John was setting up, John was doing everything as she ordered. Even when she over flowed the washer. He had to drop everything and clean that up. Usually he was the one getting the kids in their party outfits. Then this year, she goes to the party to set up. She was wearing heels and a dress or skirt I believe and her friend Beth and her girl had on jeans and a t-shirt. Who do you think did all the work? Then there were 2 other men there to help and someone set up the bouncy things. When John got there she told him to go up and see what was holding everything up and he had to dry off 2 of the bouncy things. He had ran back to the house to pick up her phone (I think) and the cakes which she forgot. Now, if she was alone with those kids I can see how she'd be so busy. But when she was setting up SOMEBODY was home with them. The food had to have been catered. So besides stuffing the pinatas and making up goody bags and sending invitations, what did she do that was so unusually hard. Do you think if John was there to help that she'd have taken suggestions from him?
On the last episode from the previous season I told my husband that I thought they should have said from day 1. If one of us wants out, we quit. When John said he was having a hard time and wanted to stop that should have been it. I'm really wondering if he was really staying at his mom's because she broke her foot or if there was a problem then too.
I think it's stupid he was out with a 23 year old. Whether he's having an affair or Kate's having an affair, that's between them. What kind of people want to make a living making other people miserable. Paparazzi that's who.
Now for Kate's brother and sister in law speaking out. I really don't know what they think can be gained by what they're saying. Some things are fine. But others cross a line. If either John or Kate came to them and told them things in confidence they should keep that to themselves.
John and Kate were so Christian there for a while. I'm not questioning their relationship with God. I just think they exploited Christianity as much as they've exploited their family. They know church women are sitting there watching their family and those women will invite Kate to speak (for a fee) and buy the books and videos.
When Kate had those kids at the children's museum and running around in high heels I thought what a change! Where's the khakis and t-shirt wearing mom? How does a mom who has to get 8 kids ready, alone, find the time to get so dolled up? When the little girl freaked out because her sister splashed her I thought that spoke volumes. Maybe she was wore out, but I think she totally over reacted and a lot of that is Kate's OCD. She does seem to have lightened up on the kids some since she is so much more focused on herself.
I really hope they can work something out for the kids. I really do. But I also think people generally marry one person and divorce some one entirely different. They are so changed. John's burnt out I think, and I can't blame him. He's younger than I am! He had those kids a lot. Whether he had help or not he really had to put those kids and his wife before his own happiness. I know Kate says she's doing it all for the kids and maybe in her own mind she's twisted it that way. Isn't the best thing you can do for your kids is treat your spouse with love, respect, kindness and understanding.
Money doesn't buy happiness and a bigger house isn't going to hide the fact Daddy is gone.
I do think it's kind of funny she got stuck with the dogs! I wonder if she's still such a stickler that the poop gets picked up. Maybe she has people for that. I can't imagine her out in her heels, sun glasses on with a glove and a bag picking up after German Sheppards. Now there's an episode I'd watch!!
Tuesday, May 26, 2009
Spam
I got the following in an email and it kind of made me laugh!
On behalf of the Trustees and Executor of the estate of
John.D.Ferguson, I once again try to notify you as my earlier letter
were returned undelivered. I hereby attempt to reach you again by this
same email address stated on the WILL. I wish to notify you that
Engr.John Ferguson made you a beneficiary to his WILL. He left the sum
of Seven Million One Hundred Thousand GREAT BRITAIN POUNDS (
7,100.000.00m) to you in the codicil and last testament to his WILL.
Being a widely traveled man, he must have been in contact with you in
the past or simply you were recommended to him by one of his numerous
friends abroad who wished you good. Engr.John Ferguson until his death
was a Member of the Helicopter Society and the Institute of Electronic
& Electrical Engineers. He was a very dedicated Christian who loved
to be involved in heritable projects. His great philanthropy earned him
numerous awards during his life time.Engr.John Ferguson died on the
13th day of December, 2004 at the age of 80 years, and his WILL is now
ready for execution. According to him this money is to support your
humanitarian activities and to help the poor and the Needy in our
society. Presently the funds (Seven Million One Hundred Thousand GREAT
BRITAIN POUNDS ( 7,100.000.00m) is deposited with a bank in UK, As soon
as get your reply the bank details will be forwarded to you for you to
contact them. Please if I reach you this time, as I am hopeful,
Endeavor to get back to me ,As soon as possible to enable me conclude
my job. I hope to hear from you in no distant time.
On behalf of the Trustees and Executor of the estate of
John.D.Ferguson, I once again try to notify you as my earlier letter
were returned undelivered. I hereby attempt to reach you again by this
same email address stated on the WILL. I wish to notify you that
Engr.John Ferguson made you a beneficiary to his WILL. He left the sum
of Seven Million One Hundred Thousand GREAT BRITAIN POUNDS (
7,100.000.00m) to you in the codicil and last testament to his WILL.
Being a widely traveled man, he must have been in contact with you in
the past or simply you were recommended to him by one of his numerous
friends abroad who wished you good. Engr.John Ferguson until his death
was a Member of the Helicopter Society and the Institute of Electronic
& Electrical Engineers. He was a very dedicated Christian who loved
to be involved in heritable projects. His great philanthropy earned him
numerous awards during his life time.Engr.John Ferguson died on the
13th day of December, 2004 at the age of 80 years, and his WILL is now
ready for execution. According to him this money is to support your
humanitarian activities and to help the poor and the Needy in our
society. Presently the funds (Seven Million One Hundred Thousand GREAT
BRITAIN POUNDS ( 7,100.000.00m) is deposited with a bank in UK, As soon
as get your reply the bank details will be forwarded to you for you to
contact them. Please if I reach you this time, as I am hopeful,
Endeavor to get back to me ,As soon as possible to enable me conclude
my job. I hope to hear from you in no distant time.
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