How's Naomi

Naomi is doing o.k.
There for a while she was having some tonic seizures where she'd fall, stiffen like she was stretching out, it would last about 5 seconds then it would end. I think adding carnitor to her diet helped that. She's not doing it anymore. She's still falling because she stiffens really quick, but it's over before she hits the ground. We are constantly following her around or putting her in her play pen which is her ball pit now. It's nerve wracking! Especially when she constantly wants to climb onto the dining room table. Isaiah heard her move a chair last night and he ran to get her and as soon as he got hold of her she seizured. That happens a lot, seizuring as soon as we get to her, I mean. Sometimes it's like seeing us coming for her triggers it. Sometimes when she's being ornery and getting into stuff she knows she shouldn't she'll have a seizure when I come to pick her up and I tell her "don't try to make me feel sorry for you" :).
In July Naomi was averaging about 15 seizures a day. Now we're up to about 40 and no idea why! We upped her ratio and that just seemed to make things worse.
We took her to a gastroenterologist last week and they're testing her for celiac disease as a precaution. It's not uncommon for them to see kids with neurological disorders, they said. We're supposed to give Naomi 11 grams of Miralax a day and prilosec. Though they prescribed a liquid Prilosec which she can't take because of the carbs and her diet. I'm waiting for the ketogenic nurse to tell them what she can take.
I'm going to have to tweak the 11 gram dosage of Miralax. She's going constantly and is way too gassy. The carnitor helped her bowels a lot! So maybe she doesn't need quite so much of a boost in that departement. The GI doctor said it can take 2 weeks on Miralax to establish a routine bowel movement.
I took her yesterday for bloodwork. They drew 4 vials for testing for celiac disease. I also called our dietitian and said I wanted her BHB (ketones in blood) tested and her glucose. For some reason she doesn't want to eat in the morning. She wakes at 6:30 and will not eat until 9:30. She needs to eat before that! Her ketones have been staying high and I want to make sure they're not too high in the morning. She's cranky also.
My mom is diabetic and I went to her house while she and Dad were gone and found her meter and tried to test Naomi's glucose on my own. It is a 2 person job! There's no way I could poke her then squeeze her finger to put blood on the strip by myself! She is way too strong. She wouldn't hold still, was screaming and just totally foul! I just put her in the car and headed home. On my way Bill called me and I told him what I tried to do and he said "can't you just take her to the pediatrician office and have them test it". To which I said "Probably, but would you want to go sit in an exam room with THIS" (insert screaming child in the back seat) "while waiting 20 minutes for the doctor to come in and see what you want!?" He didn't think so. Sometimes he'd just be better off if he made no suggestions.
So now I have to wait for the lab work to come back. The dietitian is off on Wednesdays and at another facility on Thursdays. So it will probably be Friday before I hear anything. So aggravating!

Tooth Fairy

Isaiah is 10 and lost a big tooth. It bled like crazy! He immediately said "Dad! Stick it under my bed!" (meaning pillow!). Bill said " Son, remember what we told you about Santa and the Easter Bunny? Who do you think is the Tooth Fairy?"
Isaiah says "Sissy? Papaw? OOO I'd love to see Papaw in a pink tutu and tiara! Let me guess Dad, you're just gonna give me money. Right?"
Bill gave him $5.
This happened on Saturday. The same day my Dad was picking Isaiah up to spend the night and go see Cloudy With a Chance of Meatballs. Which they really liked.
Sunday evening Isaiah was unpacking his bag from his overnight stay and flashed me a wad of bills.
"Where did you get that money?" I asked
"From Papaw and Grammy." He says
"How much did they give you?" I ask
" $15" he tells me.
"Is there a gold filling in it? What are you doing "shopping" your tooth around?" I say.
Later I call my dad and say "There's been a bit of inflation in the last 30 years. Since when is a tooth worth $15?!"
My Dad started laughing then told me that Isaiah showed them the tooth and told them his Dad gave him $5 and Papaw told Isaiah that he wasn't about to be out done by Bill. So Papaw gave Isaiah $10. Then later my mom gave him $5. I'm not clear whether she knew he'd already been paid twice for it or not.
Anyway, it ended up being a $20 tooth!
I only remember getting coins for my teeth!
He may be a slow reader and writer, but I think he's aced Economics!

My Investment Has Grown

Bill and I married 12 years ago.

Since then he's gained over 50 lbs.

He needed that 50 lbs. though! He's 6 ft. tall and only weighed 150 when we married and was so skinny you could see his backbone and ribs. He says he had a "6 pack" back then. He's wrong! It was just his ribs :)

This was his dinner Friday evening. Not JUST this, he had sides and then a slice of Mt. Dew cake for dessert.

That's a 12 inch plate the Porterhouse steak is sitting on. It was huge and he ate it down to the bone! I mean wolves leave more meat on a bone!

He's still slim. No one would call him fat.

Some days I hate him for his metabolism!

But my investment has definitely grown

Where I live...

I was taking a photo of Naomi by the front door and noticed after I took the photo there was a buggy in the back ground. I must have deleted that photo. I took a few others because the buggy stopped to talk to the Amish man walking down the street, so I had time to take a few.




So Here's proof, I live in Amish country. I don't know what was going on but from about 6:30 Saturday morning and through out the day there just seemed to be buggy after buggy. The photo of Naomi with the dog on the arm of the couch looking out the window shows how much our dog hates buggies. Well I don't think it's the buggy she has a problem with it's the horses and the sound their hooves make going down the road. Our dog is 13 lbs. I don't know what she thinks she'd do to the horse if I let her loose!

He Can See Clearly Now

"When I go back to school tomorrow, I'll be a whole new man."

- Isaiah

My Neck of the Woods

Apparently a local farm was featured in a New York Times story about Haycations. I thought I'd post a link to the farms website because it tells a lot about our area. http://morganfarmstudios.com/
This week is the Ashland County Fair. In true fashion, it's humid, rainy and cool in the evenings.
It's just not fair week without some mud!
I asked Isaiah if he wanted to go to the fair one evening and he said "why? You won't let me ride the rides anyway."
No I won't. Every year there are stories about kids electrocuted on Ohio fair rides and such. So sorry but I'll pass on putting my kid on a ride put together with rubber bands and bubble gum.

More blimp!

I told you I see the blimp frequently! I spotted it again today while driving home from church! It was at a distance from me, not directly over head and it's so much like a whale in the sky, the front is slightly up, then the back. Then it levels out. It made me think that maybe it would make me a little nauseous to be riding in it.