Wednesday, May 26, 2010

And So It Goes



I have watched this countless times over the last two days.
It depresses the heck out of me, but I love it!
It's not the reference to a lost love, it's more than that. It's loss in general I guess.
There's a part where he says " Everytime I've held a rose it seems I've only felt the thorns". That makes me think of kids like Naomi. There's so many thorns some days I don't stop and enjoy the rose.
There's so much worry. Stupid stuff like meals, bowel habits, medicine weans (after a month I'm sure we're out of the woods), her falling. The stress of her screaming when I change a diaper, comb her hair, put her helmet on. Sometimes I am so sick of the screaming, there's no reason for it. But I understand she can't communicate and that's frustrating. But still, the screaming feels a bit like torture some days.
So here's what's new or not so new
We dropped her Zonegran to 25 mg in a.m. on April 28 and so far so good. She still takes 50 mg at night. That dosage didn't change. I'm supposed to call anytime now and see about dropping another 25 mg. But we are going to a graduation out of state and I really don't want to be in the middle of a med wean while away from home. One good thing is taking away just 25 mg also rid her of the "can't sweat" side effect. I've had her out in 80+ degree weather for over 20 minutes and there was no sign of over heating.
Naomi's stroller is not here yet. It is litterally on a slow boat from China :) When we ordered it they were manufacturing the strollers in China and have since moved it to USA. Which is a nice change! But it's taking FOREVER. 3 weeks ago they said it should be here in 2 weeks. But no word yet! I can't even remember how long it's been since it was ordered. I know I thought we'd have it by the end of April and that didn't happen.
School is almost out! I am so happy! Isaiah has 2 test tomorrow and I wish that was it, but I know he started a new chapter in Social Studies on Monday, so I'd think they'd test on that at some point. They are running out of time!

Saturday, May 8, 2010

Fashion Babies

I heard something on TV yesterday that really irritated me.
We all know Sandra Bullock adopted a baby. Well, she's being criticized for adopting a black baby. Some say she just did it because it's fashionable. Seriously! People are so stupid! Can they not just be happy that a baby found a good home? And "Fashionable"???? Is that really how they want to put it?
Immediately what sprang into my mind was Paris Hilton and her stupid tiny dogs tucked under her arm. Then Brittney Spears and every one on TV seemed to have a little dog, the tinier the better, tucked in their arm, in their purse etc....
But a baby?! As a fashion accessory? Come on!
I was telling all this to Bill last night and laughed and asked "When will a baby in a helmet be fashionable? Cause I got one of those!". I'm not into shoes or jewelry or any of that so that's my only hope of ever being fashionable!
Come on Angie and Brad! Strap some hockey helmets on a kid or two and help my cause along!