Monday, January 4, 2010

Medical Mystery Show

Last night we flipped past one of those shows that starts with a person's symptoms and all they went through trying to find a diagnoses. Well this one was a little girl. Her mom would put her to bed every night and about an hour into sleep she'd vomit.
They took her to all sorts of doctors, even an allergist, who gave her something to keep her from vomiting. It worked one night then the vomiting continued and got worse. She started vomiting multiple times a night.
Already by this point I have looked at Bill and simply said "seizures".
So then the woman says her daughter vomited one night and as she cleaned her up she asked if she was alright and the little girl was slurring her words. The mom was scared to death and thought she'd had a stroke.
Again me: "Seizure"
So they take her to the ER and a neurologist sees her they do an ______ come on mother's of epileptics? Can you fill in the blank? Correct! MRI! It came back normal
Then they did ______????? Any guesses???? An EEG! YES!!! Of course. Sounds like some of you have been through this before!
That's pretty much how Bill and I continued watching the show.
They were putting leads on the girls head for the girls EEG and we said "OH! I always wondered how that worked!"
The EEG seemed normal but they wanted to get a record for what happened to her as she slept. So they admitted her and did a video EEG where, as they explained, the child was hooked up to EEG and was video taped simultaneously 24 hours a day.
By this time, they are preaching to the choir! We were not the family to be touting this in front of! We know all about this bit of technology. Naomi has stayed on two occasions in the pediatric monitoring unit going through this exact thing.
They showed the EEG and the video of the child as she vomited. This is where we lost Isaiah.
He can almost vomit on will, but can't deal with others.
The neurologist went on to say that the child had epilepsy and they explained what went on in the brain during a seizure. So they got the child on medication. She said she had to take 14 pills. Then at the end the mother came on and said the child hadn't had a seizure in 3 months.
I looked at Bill and he said "that just pisses me off. Why can they fix that kid and our poor baby still has seizures every day".
It's a sad thing. I hope all kids are seizure free at some point. They sure didn't spend much time explaining that they often don't know why kids have seizures.
More about Naomi later. I'm waiting for instructions from the clinic now.

2 comments:

SuzanSayz said...

Kind of a sad commentary on our state of medical mysterys when moms and dads watching the show know what is wrong way before all the super expensive teast are finished. I can understand the frustration of seeing one child helped while yours continues to have seizures. God Bless little Naomi.

David said...

i read about a medical mystery a few weeks ago...some person who hiccups constantly all day every day!