Background

My 2 year old started having daily idiopathic myoclonic-astatic seizures Aug 2007 when she was about 18 months old. She's had excellent medical care yet has failed Keppra, Depakote Sprinkles and Topamax. Currently she takes Keppra, it helped but didn't stop the seizures, and Topamax. We are weaning her off Topamax in preparation for the Ketogenic diet. I just started the weaning process on Thurs. but so far so good. We are waiting for the nutritionist to call to tell us when she'll be admitted to start the diet. We are so happy to be given the chance to at least try the diet. The doctor feels there's a 50/50 chance the diet will work and we should know with in 2 weeks if it works for her. Everything I read says any new med we try will have a max. 10% chance of working. I've decided to start this blog because, we are at the start of this journey and maybe someone else will find our information helpful. For now, her development is delayed. Physically she's grown fine, her motor skills are fine. The child and run, jump, climb and everything else. Her speech is a major concern. She is stuck on the word no, uses it for everything and understands when we say it. She used to say more words but they come and go. Whether that's the seizures or the meds, I don't know. She's delayed in cognitive skills, I can't tell her to go do something and she'll do it. She hears what we're saying but it doesn't seem to register. Sometimes it seems like she does understand what we're telling her but her brain won't let her do what she needs to do.
Sometime I'll post what tests have been done and so forth, because I have total faith in her Dr's and maybe they check something others don't routinely check for. She's had a ton of tests!