Tuesday, September 23, 2008

So, How did Keppra work out?


Well, Keppra helped... there at the beginning she had a couple seizure free days or at least days I didn't see her seize. But never 2 days straight and that was at a very low dose. We upped her dosage every so often until she got 5 ml twice a day. At one point it did make her seizures predictable. She really only seemed to have seizures right after waking. It was also after starting Keppra that her seizures seemed to cluster. But..... Since it didn't stop the seizures Dr. T wanted to try another drug. Before we did that though they wanted to do an MRI and admit her to the hospital to the Pediatric Monitoring Unit so they could do a video EEG. We did that and may I say the hospital staff was marvelous! Dr T gave us info on 2 different drugs and told us to read about each of them and their side effects and let her know which one we'd feel comfortable with. Our choices were Valproic Acid (Depakote) or Topamax. She came a day later to see what we'd decided. Well, it's all bad and we opted for, what ever she wanted. We figure this is the only child we've seen with seizures, she's seen thousands. So she said she felt Valproic Acid would be best in the form of Depakote Sprinkles. Also she prescribed Carnitor to protect the liver from the Valproic acid. She wanted us to stay at the hospital through the first 3 dosages just to make sure everything was o.k. She told us we should be able to leave Sunday morning. Well then later the nurse came in and said it looks like you're going home tomorrow. So then we got ready to leave, mentally. Then on Saturday a.m the doctor on rounds said "I hear you want to leave" and I told her the nurse said the Dr's orders said we were to leave and she said no it's Sunday and I asked exactly what reaction we were looking for because she'd had her 2nd dose that morning and so far no reaction, so the only reason we'd be there another day was that her 3rd dose would be in the p.m. Well they ended up letting us leave around noon This was day 4 of being there, which in some ways felt like day 40! Although the staff was wonderful and it went better than expected, no one wants to stay in the hospital longer than they have to! Also during our stay we met with Dr P and 2 of his residents. Dr P was to be our "why" doctor. Dr T is the treatment Dr. more about Dr. P another time. So we were leaving on a starting dose of Depakote Sprinkles but still on the Keppra because they didn't want to loose any ground they'd started.

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