Thursday, September 25, 2008

Cut to the present- weaning off Topamax

My daughter is weaning off Topamax. I tried to find out what to expect by Googling the topic but couldn't find anything helpful, that's the reason I started this. So today is 1 week that we have been weaning off Topamax. Dr. T said to go down 15 mg every 3-6 days. When we started she was on a dose of 60 mg in the a.m and 75 mg in the p.m. Today we are at 45mg/a.m. and 45 mg/p.m. It started out really smooth. She was having more seizures but they were extremely mild! She was having "straggler" all day too. But, in the last day or so the "stragglers" are gone she's pretty much strictly just seizing when she wakes. This morning she had 47 in about 10 minutes when she woke, I must say that she would not take a nap yesterday and that may have something to do with today also. Then she had therapy and we were there for 1 1/2 hours and I saw 2 little seizures after she got excited. She fell asleep for 30 minutes in the car and woke and had 40 in 5 minutes and went back to sleep soon and slept 1 1/2 hours she woke and had 40 some more in 5 minutes, they all were light except 10, those she clenched up for a second pretty good and her head dropped fast. This isn't a huge change from what she was doing before. Also her behavior is better. She was biting out of frustration and hasn't bit me once since we started weaning her. Also she's just more "there". It's easier to get her to laugh, she interacts more and makes better eye contact. She's even making more sounds and trying to say more words but there's a way to go until that improves to where it should be. She still loves the word NO! She's beating a drum along with music, which she used to do all the time but I couldn't tell you the last time she'd done that! All in all, after one week, no major change, some seizure activity could be attributed to withdrawal too. So who knows.

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