Update on Naomi

Naomi turns 3 tomorrow! Yeah!
She's had daily seizures over 1/2 of her life! BOO
It's all good though! She's a joy!
I took her down to 400 mg for her morning dose of Keppra. She once took as much as 600 mg/ 2X day. The neuro at our last appt. said we could go to 500 mg/ 2x day. That's still a high dose. The neuro also asked me if I wanted the full wean schedule and I said no, then almost immediately wished I'd said yes! Well ,after over a month of 500 mg I figured I'd try going down just on her morning dose to 400 mg. There's been no bad effects. She's had a few more seizures this week but I'm putting them down to teething (possibly, no visible signs yet). Gnawing at hands and anything that will fit in her mouth along with the peanut butter-ish diapers (GAG) all things point to teething! Isaiah had a dentist appt. today and the denstist looked in Naomi's mouth too because I told him her 2 year molars haven't all came up yet. He noticed her biting her hands and thought it looked like teething too. So there, a professional opinion!
THE DAY I took her down to 400 mg she was SOOOOO much more vocal all day long! Today the speech therapist really got to hear a lot more sounds and knew something had changed. In the therapy waiting room Naomi got a book out and was OOOOHing and AAAHing over it and another mom asked "is she looking at a Tarzan book?" HAHAHAHA it did sound like a Tarzan call that she was making! But she was just happy!
The physical therapist and the occupational therapist both heard her try to say "more".
Since she'll be 3, starting next week she'll recieve more services. Here's how our weeks look now
Monday 1/2 hour Physical therapy in the morning at home
Tues starting at 9 a.m. Physical, Occupational then Speech, all 1/2 hour sessions at the Pediatric
Therapy Center then at our house the itinerate teacher from 2:20-3:20 p.m. then
occupational therapy for another 1/2 hour starting at 3:20
Wed.. Speech therapy at her old school from 2:45-3:15 pm
Thursday starting at 8:30 a.m. back to Pediatric Therapy for PT, OT and Speech ( each 1/2
hour sessions again)
Friday WHAT WILL WE DO WITH OURSELVES!?? Nothing scheduled!
What a full schedule we'll have! Hopefully we'll see good results from all the effort she'll be putting forth!