Well, she's been good, she's been bad. It's been strange.
One day she has a good day (none seizure free yet). The next day she might have a terrible day. Her mornings have been better but then it's nap time and she wakes up and has terrible clusters that sometimes go 20 minutes and I'm about to grab the Diastat when they stop. The big clusters she usually falls asleep again afterwards and then wakes up fine, no more seizures.
Today she had a great morning. She was laughing, loving and just being silly. She even took a 1/2 hour nap in the morning since she did get up at 5! she woke up and was just fine. Then about noon she got really tired and just looked awful so I took her upstairs and laid down too. I was sleepy also! She slept about 2 hours and woke up and for 4 minutes her seizures were light then for 6 minutes they started to really jerk her then at the 10 minute mark they got really light and were mostly as strong as a hiccup for 5 minutes but they tired her out too. So all in all they lasted 15 minutes.She laid back down beside me for about 20 minutes. Since she's been awake she's so calm it's eerie. Bill keeps feeling her head to make sure she doesn't have a fever. She is acting like she was when we were at the hospital. She's sitting in her bean bag chair watching t.v. We put a musical in and she's rocking back and forth to Thomas' Trackside Tunes. She's very quiet too. Maybe her ketones are finally going to kick up. I hope so.
I messed up and gave her 62 grams of cream with her meal instead of 49 grams. It'll just mean a higher ratio but she got an extra 40 calories. Oh well, accidents happen. I had 2 cups of cream made up, labeled and everything and just happened to grab the wrong one and didn't even notice!
Monday, November 24, 2008
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